Sitemap Home About us The team Progress made Contact Search resources Resources search Publications The route to success in end of life care – achieving quality for lesbian, gay, bisexual and transgender people Imported Publications A beginner's guide to commissioning A Code of Practice for the diagnosis and confirmation of death A Family Companion A Good Death A guide to involving patients, carers and the public in palliative care and end of life care services A Living Dying Journey A New System of Registration A Recipe for Care - Not a Single Ingredient A stronger local voice A vision for adult social care ABCD Position Statement: Diabetes and End of Life Care Access to health care Act & early to avoid A & E Adult Social Care Advance Care Planning Advance Care Planning in Care Homes for Older People Advance Care Planning: an opportunity for person-centred care for people living with dementia Advance Care Planning: National Guideline Advance Decisions to Refuse Treatment Support sheet 4: Advance Decisions to Refuse Treatment Advance Decisions to Refuse Treatment (ADRT) proforma Advanced End of Life Strategy for Risedale Estates An analysis of the numbers of hospital complaints relating to end of life care over a six month period An evaluation of Planning for your Future Care: A Guide An example of introducing the Macmillan/Open University Foundations in Palliative Care An Outcomes Strategy for Chronic Obstructive Pulmonary Disease (COPD) and Asthma in England Analysis of the Gold Standards Framework monitoring of Community Palliative & End of Life Care Annual Evidence Update on Parkinson's Disease Artificial Nutrition and Hydration Ascertaining Wishes: a good practice guide A peer education programme for end of life care education among older people and their carers Becoming a carer: a booklet about looking after someone with dementia Bereavement care in primary care Bereavement care services: a synthesis of the literature Best Interests at End of Life Better Health in Old Age Briefing Paper on the Gold Standards Framework in Care Homes Capacity, care planning and advance care planning in life limiting illness Care and Compassion? Care and respect in death Care Quality Commission Annual Report Care towards the End of Life for People with Dementia Carers at the heart of 21st century families and communities Carers' services guide Caring Counts Caring for Patients with Advanced Kidney Disease at the End of Life - Ten Top Tips Caring for people with long term conditions Caring in Later Life Changing Gear Characteristics of care providers and care receivers over time Choice and decision making in palliative care Chronic heart failure quality standard Chronic kidney disease quality standard Chronic obstructive pulmonary disease (COPD) quality standard Commissioning Commissioning Cancer Services Commissioning for Carers Commissioning for Diabetes End of Life Care Services Commissioning for personalization Commissioning services for people with dementia Common and complex: Commissioning effective dementia services in the new world Common Core Competences and Principles Compromised Swallowing Consent guidance: Respecting a patient's decisions Costs and benefits of managing low priority 999 ambulance calls by NHS Direct nurse advisors Counting the cost Creative partnerships: Improving quality of Life at the end of Life for People with Dementia Critical success factors that enable individuals to die in their preferred place of death Death & Dying Deaths from Alzheimer's disease, dementia and senility in England Deaths from Respiratory Diseases Deaths in Acute Hospitals: Caring to the End? Deaths in Older Adults in England Deaths Registered as Occurring Elsewhere Decisions made in a person's 'Best Interests' Delivering End of Life Care in Housing with Care Settings Delivering the Cancer Reform Strategy Dementia Dementia 2010 Dementia care in London Deprivation and death Developing end of life care practice Developing Skills: Talking About End of Life Care Difficult Conversations Dignity in Care Dignity in end of life care Dignity in Housing Directory of key contacts Disability Distress Assessment Tool (DisDAT) Do Not Attempt Resuscitation (DNAR) Decisions/Orders Draft Spiritual Support and Bereavement Care Quality Markers and Measures for End of Life Care Dying for Change Dying in Older Age e-ELCA: End of Life Care for All - A Briefing Early experiences of implementing personal health budgets End of Life End of Life Analyses End of Life Care End of life care - achieving quality in hostels and for homeless people End of Life Care for People with Dementia End of life care for people with dementia in Haringey End of Life Care in Advanced Kidney Disease End of life care in heart failure End of Life Care Initiative in Care Homes Pilot Project End of Life Care Patient Charter End of life care planning with people who have a personal health budget End of Life Care Strategy End of Life Care Strategy Quality Markers and Measures for End of Life Care End of Life Care Strategy: First Annual Report End of Life Care Strategy: Second Annual Report End of Life Care Strategy: Third Annual Report End of Life experience and its impact on bereavement End of Life Journal End-of-life care conversations with heart failure patients End-of-Life Care Definitions and Triggers to Assessment Enhancing the Healing Environment Equal Access? A practical guide for the NHS Equity and excellence: liberating the NHS Essence of Care 2010 Ethnicity, Older People and Palliative Care Evaluation and ethical review of a tool to explore patient preferences for information and involvement in decision making Evaluation of Learning Resources for End of Life Care in Extra Care Settings Evaluation of Preferred Priorities for Care Evaluation of the Dying Matters GP Pilot Project Experiences of implementing personal health budgets External causes of death Fact Sheet 4: End of Life Care Commissioning Fact Sheet 6: Support for Carers Fact Sheet 8: End of Life Care in Sheltered and Extra care housing Finding the Words Flow Chart for Supportive Care: care home / supportive housing Focus On Care Homes - Improving palliative care provision for older people in care homes Focus On Commissioning - End of Life Care: A Commissioning Perspective Funding the right care and support for everyone Future Trends and Challenges for Cancer Services in England Gap Analysis Toolkit Getting Medical Help Out of Hours Good practice in services for older people Government response to the House of Commons Health Select Committee, third report of session 2010-11: commissioning GSF Factsheet 2: Specialist Nurses GSF Factsheet 7: Hospices Guidance for bereavement needs assessment in palliative care Guidance for commissioning integrated urgent and emergency care: a whole system approach Guidance for staff responsible for care after death Guide to developing a non-cancer service - A resource for hospices Guide to Preferred Priorities for Care Health is Global Hello and how are you? Help is at hand Holistic assessment Holistic common assessment Holistic Common Assessment of Supportive and Palliative Care Needs for Adults with Cancer Holistic Needs Assessment for people with cancer Hope for Home Hospice and Palliative Care - Access for All Housing rights resource pack How can local authorities with less money support better outcomes for older people? How to deliver high-quality, patient-centred, cost-effective care Humber and Yorkshire Coast Cancer Network End of LIfe Care Project Implantable Cardioverter Defibrillators (ICDs) In Patients Who Are Reaching The End Of Life Implementing the End of Life Care Strategy Important choices Improvement Leader Guides: Complete Set Improving Care for People with Long Term Conditions Improving care for people with long term conditions Improving end of life care in neurological disease Improving Outcomes: A Strategy for Cancer Improving services and support for people with dementia Improving support for older people looking after someone with advanced cancer Improving Supportive and Palliative Care for Adults with Cancer Improving the health and well-being of people with long term conditions Improving the patient experience: Enhancing the Healing Environment Programme Improving the process of death certification in England and Wales Improving the Productivity of the English NHS Improving your NHS Independent Mental Capacity Advocates (IMCAs) Independent review of the Dignity in Care Campaign Information for commissioning end of life care Inside Your Hospital Integration this time? Issues facing commissioners of end-of-life care Joint newsletter: Macmillan Primary Care Conference Joint Statement re: NHS Continuing Healthcare Funding for End of Life Care within Care Homes Keeping personal budgets personal Knowledge set for end of life care Learning from innovation Liberating the NHS Liberating the NHS Listening to Older People Liverpool Care Pathway: response to media reporting Living Matters: Dying Matters Living well in later life Living well with dementia Living well with dementia - the National Dementia Strategy Living well with dementia: A National Dementia Strategy Good Practice Compendium Macmillan End of Life Care Newsletter Making care safer Making sense of human rights Making social care better for people Making the case for public engagement Management of patients with Swine Influenza A (H1N1) Virus Map of Medicine Means to an end Medicines supply in an Integrated Palliative Care Service Mental Capacity Act (2005) Mental Capacity Act 2005 - Making decisions Mental Capacity Act 2005 - Making decisions Mental Capacity Act 2005 - Making decisions: about your health, welfare or finance. Modernising adult social care More choice, greater voice MS and Palliative Care My Home Life National Audit of Dementia National Cancer e-Atlas National End of Life Care Intelligence Network Bulletins National End of Life Care Programme newsletter National Framework for Continuing Care National Service Framework for Renal Services National Survey of Patient Activity Data for Specialist Palliative Care Services NEoLCP Newsletter issue 1 NEoLCP Newsletter issue 10 NEoLCP Newsletter issue 11 NEoLCP Newsletter issue 12 NEoLCP Newsletter issue 13 NEoLCP Newsletter issue 14 NEoLCP Newsletter issue 15 NEoLCP Newsletter issue 16 NEoLCP Newsletter issue 17 NEoLCP Newsletter issue 18 NEoLCP Newsletter issue 19 NEoLCP Newsletter issue 20 NEoLCP Newsletter issue 22 NEoLCP Newsletter issue 25 NEoLCP Newsletter issue 28 NEoLCP Newsletter issue 3 NEoLCP Newsletter issue 4 NEoLCP Newsletter issue 5 NEoLCP Newsletter issue 6 NEoLCP Newsletter issue 7 NEoLCP Newsletter issue 8 NEoLCP Newsletter issue 9 NEoLCP Newsletter issue 2 NEoLCP Newsletter issue 21 NEoLCP Newsletter issue 23 NEoLCP Newsletter issue 24 NEoLCP Newsletter issue 26 NEoLCP Newsletter issue 27 NEoLCP Newsletter issue 29 NEoLCP Newsletter issue 30 NEoLCP Newsletter issue 31 NEoLCP Newsletter issue 32 NEoLCP Newsletter issue 33 NEoLCP Newsletter issue 34 NEoLCP Newsletter issue 35 NEoLCP Newsletter issue 36 NEoLCP Newsletter issue 37 NEoLCP Newsletter issue 38 NEoLCP Newsletter issue 39 NEoLCP Newsletter issue 40 NEoLCP Newsletter issue 41 Network-Wide Guidelines New Approaches to Supporting Carers' Health and Well-being NHS Choices NHS Gloucestershire's Planning for your future care NHS North East Advance Decision to Refuse Treatment (ADRT) form NHS resources and reform NICE end of life care for adults quality standard No excuses. Embrace partnership now. Step towards change! Older Carers and Involvement in Research Our health, our care, our say Our NHS Our future Palliative and End of Life Care for Older People Palliative Care Funding Review Interim Report Pan Birmingham, Palliative Care Network Care Homes Service Improvement Programme (SIP) for Care at the End of Life Personalisation through Person-Centred Planning Population Based Needs Assessment for Palliative and End of Life Care Practice based commissioning Practice-based commissioning budget guidance for 2010/11 Predicting death Preferred Place of Care Pilot South Essex Palliative and Supportive Care Network Preferred Priorities for Care Support sheet 18 Preferred Priorities for Care (PPC) Preferred Priorities for Care document - easy read version Preferred Priorities for Care: West Essex Evaluation Preparations for pandemic influenza Principles of Good Communication Procedure for the Transportation of Patients with Specialist Palliative Care Needs Promoting Excellence Promoting Innovative End of Life Care Practice within Ambulance Trusts Public Accounts Committee Evidence Session on 'End of Life Care' Quality Markers for Acute Hospitals Quality Markers for Care Homes Quality matters Quality outcomes for people with dementia: Building on the work of the National Dementia Strategy Quick guide to identifying patients for supportive and palliative care Rapid Review of Research in Survivorship After Cancer and End of Life Care Recognised, valued and supported Recommendations report for the improvement of supportive and palliative care services for heart failure and COPD Registration: End of LIfe Care Training Report on Prince's Court Initiative Reversal of the British trends in place of death: Time series analysis 2004-2010 Route Map for Sustainable Health Route to success: the key contribution of nursing to end of life care Routes to success: achieving quality environments for care at end of life Scotland's National Dementia Strategy Scotland's National Dementia Strategy Securing Good Care for Older People Sensitive reporting in coroner's courts Shaping Bereavement Care - a framework for action Social care and hospital use at the end of life Spiritual Care at the End of Life: a systematic review of the literature Spirituality in nursing care Standards for Spiritual Care Services in the NHS in Wales 2010 Standards of Care for Dementia in Scotland Staying effective in a changing world - tools of the trade for facilitators in end of life care Strategic plan 2010-2015 Stroke-Specific Education Framework Submission forms Supporting Carers: An action guide for general practitoners and their teams Supporting Children Supporting homeless people with advanced liver disease approaching the end of life Supporting people to live and die well Supporting people with long term conditions to self care Symptom control guidelines for patients with chronic heart failure Tailor made Talking About End of Life Care Talking Needs Action training needs analysis The ACT Transition Care Pathway The Challenge of Co-Production The Commission on Assisted Dying The differences between general care planning and decisions made in advance The Dying Process The Leeds Project - Transportation of Palliative Care Patients The National End of Life Care Intelligence Network (NEoLCIN): report of the first year The National End of Life Care Programme's communication skills pilot project The NHS Constitution for England The NHS End of Life Care Programme The NHS End of Life Care Programme: Progress Report The NHS Quality, Innovation, Productivity and Prevention Challenge The Operating Framework for the NHS in England 2010/11 (revision) The Preferred Priorities for Care (PPC) Document: Guidelines for Health and/or Social Care Staff The Quality of Death The Role of Psychology in End of Life Care The route to success in end of life care - achieving quality for people with learning disabilities The route to success in end of life care - achieving quality in acute hospitals The route to success in end of life care - achieving quality in ambulance services The route to success in end of life care - achieving quality in care homes The route to success in end of life care - achieving quality in domiciliary care The route to success in end of life care - achieving quality for occupational therapy The route to success in end of life care - achieving quality in prisons and for prisoners The Third Year of the Independent Mental Capacity Advocacy (IMCA) Service The transformative power of effective facilitation This is Me Tools / Models of Delivery Transforming Community Services: Ambition, Action, Achievement Transforming end of life care in acute hospitals Transparency in outcomes Treatment and care towards the end of life Ultimately Personal: Shaping Services Around People in End of Life Care Understanding distress in people with severe communication difficulties: piloting and assessing DisDAT Understanding out-of-hospital dementia care Urgent Care - Special Messages Using the NHS Continuing Health Care Fast Track Pathway Tool Variations in Place of Death in England We're living well but Dying Matters What can we do? What standards to expect from the regulation of agencies that provide care in your own home What standards to expect from the regulation of your care home What the End of Life Care Strategy means for patients and carers What to do after a death What to do when someone dies What to expect from the regulation of your NHS hospital When a patient dies When a person dies: guidance for professionals on developing bereavement services Who pays? Establishing the responsible commissioner Widening access to hospice care Windows of opportunity: prevention and early intervention in dementia Working to Put People First Working together for a stronger NHS World Alzheimer Report 2010 Young People: Life limiting conditions The route to success in end of life care – achieving quality for social work QIPP Costings Report Information standard record keeping guidance Commissioning toolkit Understanding patterns of health and social care at the end of life ACP guide e-ELCA getting started and support pack 1% GP Pack End of Life Care Facilitator Competency Framework form Macmillan Primary Care Conference joint newsletter Transform programme feedback report IHM EoLC RtS evaluation IHM EoLC RtS evaluation - disease specific ELCQuA flyer Progress for Providers - People living with dementia in care homes December 2012 National End of Life Care Programme Newsletter Social Care Workstream Report Independent evaluation of social care test sites End of Life Locality Registers evaluation interim End of Life Locality Registers evaluation final Case Studies Featured case studies Multimedia In the end, care counts 2012 conference highlights Transform programme We're living well but dying matters Route to Success resources Support sheets Transforming end of life care in acute hospitals About the Transform Programme Making progress Resources and contacts DNACPR web resource 2. Cardiopulmonary resuscitation 3. Making CPR and DNACPR decisions 4. Organisational approaches and policies 5. Communication and advance care planning 6. Outcomes of CPR 7. Documentation 8. Official and regulatory protection for patients 9. Changing perspectives: health, dignity, burdens, risks and harm 10. Challenges posed by the complexity of modern healthcare 11. Reflections 12. Vignettes 13. References 14. Resources Glossary Support & advice Strategy Raising the profile of end of life care Strategic commissioning Identifying people approaching the end of life Care planning Coordination of care Delivery of high quality services Rapid access to care Last days of life and care after death Involving and supporting carers Education, training and development Measurement and research Funding Policy NHS White Paper - July 2010 Health and social care bill 2010-11 QIPP By care setting Acute hospitals and secondary care Ambulance services Care homes Community care Community hospitals Hospices Hostels for the homeless Housing Primary care Prisons and secure hospitals Social care Specialist palliative care By health condition Cancer Dementia Heart failure Kidney disease Liver disease Long term conditions Neurological diseases Respiratory diseases By personal background Black, Asian and minority ethnic Homeless people Lesbian, gay, bisexual and transgender Older people People with learning disabilities Prisoners Young adults Individuals and carers Further information and advice Facilitators and champions Podcasts GPs Commissioning Commissioning update General commissioning information Commissioning policy and strategy Commissioning for specific conditions Cancer Dementia Diabetes Heart failure Kidney disease Learning disability Long term conditions Neurological conditions Commissioning for specific care settings Ambulance trusts Community care Housing Primary care Secondary care Social care Best practice examples Sample service specifications 24/7 provision service specifications Data & statistics Spiritual care Care pathway Step 1 - Discussions as the end of life approaches Find your 1% AMBER Care Bundle Step 2 - Assessment, care planning and review Advance care planning Preferred Priorities for Care Holistic common assessment Mental Capacity Act Step 3 - Co-ordination of care EPaCCS Benefits of EPaCCS EPaCCS in action Information governance Sharing information EPaCCS resource library National information standard About the information standard What is an information standard? Feedback Frequently asked questions Step 4 - Delivery of high quality services in different settings Step 5 - Care in the last days of life Liverpool Care Pathway Rapid discharge pathways Step 6 - Care after death Education & training Communication skills Communication skills project pilot sites Berkshire Easy Community Health Services Dorset Cancer Network East of England Cancer Networks (incorporating NHS West Essex) Greater Manchester Lancashire & South Cumbria Leeds Leicestershire & Rutland – LOROS North East and South East London Cancer Networks Plymouth University of Teesside Commissioning guidance Evaluation Pilot site reports Evidence Need for training Identifying barriers Evaluating effectiveness Impact of training Evidence base for e-learning Sustainability of skills Training recommendations Connected advanced level training evidence base Tools TNA Questionnaires Advance care planning Introduction Module 1 Module 2 Module 3 Module 4 Appendices Core competences e-ELCA Accessing e-ELCA Oxford Learning Pathways Learning resources - on this website Learning resources - other websites Finding the right direction & training Management development Higher education Research & evaluation What is research? Research protocols Collecting information Social or health-related research Research results Dissemination Why do research? How to do research The purpose of research Formulate your research questions Develop a research protocol Standards of ethical conduct Apply for funding Take expert advice Disseminate your research findings Main methodologies Research governance How to find research What is evaluation? Types of evaluation Structure, process, outcome study What evaluation isn't Why evaluate? How to evaluate Develop clear aims and objectives Identify data types Data collection Think about outcomes Evaluation report More complex evaluations Audit How to audit Latest information News & events News Events End of life care conference 2012 Norman Lamb MP Claire Henry Jim Easton Rick O'Brien and Dr David Paynton Prof Sir Mike Richards Workshop 1 Workshop 2 Workshop 3 Workshop 4 Workshop 5 Workshop 6 Workshop 7 Workshop 8 Workshop 9
Resources End of Life Care Update May 2013 20 May 2013 NEoLCP Newsletter March 2013 27 March 2013 More resources
News & events More people are dying at home since launch of the National End of Life Care Programme 26 March 2013 NEoLCP director Claire Henry wins lifetime achievement award 15 March 2013 More news & events
Quick Links Dying Matters Information standard e-Learning Quality assessment Route to success Intelligence network Glossary Contact